A few weeks ago I had the roughest few days as a parent so far.
I'll make a long story short, but basically Madeleine passed out when we were in a store, and we ended up at the hospital two days in a row for several tests. She had an EKG, and EEG, and a CT scan, as well as our pediatrician doing a complete physical exam and found nothing wrong with her. Waiting for the results of those tests, when they were throwing out words like epilepsy, seizure, brain tumor, bleed, was absolute torture. Seeing my sweet baby girl getting hooked up for the EEG while screaming for 30 minutes and the nurse laying on top of her to hold her down was horrible. Knowing that she didn't understand what was going on but having to make her go through all that just ripped my heart out. And seeing her big blue eyes look at me and fill with tears made mine fill up with tears as well.
After finding nothing wrong with her, the doctor just said to watch her and report any new symptoms. She had another episode this past week, and today we went to see a pediatric endocrinologist. It turns out she has Ketotic hypoglycemia. So basically we have to make sure she eats very regularly. And to make sure she has some kind of protein and sugars in every meal, like a sunflower butter and jelly sandwich or her milk with the kids reliv. She is supposed to have a snack before bed and eat when she wakes up so she doesn't go too long without food. Thank GOD it's this and not one of the other things they were testing for.
Both mornings that she had these episodes she had refused to eat breakfast. She is not into eating at all these days! It's seriously a battle at every meal. I think it's a stubborn thing - she knows we want her to eat so she just won't. We have to trick her into eating every time we sit down. I guess we're just going to keep trying and start leaving some healthy snacks out so she can graze and keep those blood sugars up!
Oh and some GREAT news at our house.... she has been drinking real milk and eating cheese for a week now with no ill effects!! I am SO happy! I got to make my very favorite homemade mac and cheese tonight for her for the first time. It was a hit! She is drinking real milk and loves it. Today actually I gave her some rice milk we had left over and she said, "I don't want THIS milk, Mommy, I want REAL milk." haha!
Thanks for all of you who prayed for her in the past few weeks. It really really helped!
11 comments:
I am so glad you discovered the reason, and it is such an easy one to solve. Now the trick is finding something she will regularly eat that is high in protein!
Oh my goodness! How horrible that you family had to go through this. I am glad to hear that it is nothing incredible serious but it must be hard to not worry all the time. I will remember your family in my prayers.
Oh my goodness, Beth! I am so glad to hear that she's okay. That would be terrifying to say the least.
Yay for dairy products, too!
Oh my! I didn't know she had another one. However, I so glad you found the reason. Some times making it a game works too. I race Jack on his broccoli and berries. I just go really slow and always let him win. He gets really excited win he finishes first. He hasn't caught on yet! :-)
I can't imagine how worried you have been! So glad there is good news and she is doing well.
I missed your last post on the show, but for the record, I am so with you.
how scary for you and poor little m!!! i would lose it if my baby was all sick and getting tests like that!
i'm so glad that the solution is a simple one. as someone that has to eat on a regular basis i feel her pain. i have snacks EVERYWHERE! it's actually a joke for all of my friends and colleagues at work. "hey you're hungry, go see jb, she has a TON of food in her room!"
lucky kid that she can have real milk. i could only dream!!!
Yea, I am glad they figured out what was going on. And I am glad it is something you can fix with diet changes. I know those are hard but God has prepared you for this with the milk allergies. Youa re doing a fantastic job as a mom. I wish you were mine.
Oh my goodness! That fear must have been unbearable. Thank God that it is not serious!
So glad that it is something easy to deal with... and cheese is such a great snack, yeah!!!
I hope M does better :( Mary loves sunflower butter and jelly sandwiches.
Yes! Watching medical procedures which cause our children pain is horrid and they forget sometimes (those medical professionals) that us parents need a little reassurance too!
I'm really glad they figured out what's wrong and hopefully as Madeleine gets older she'll be able to understand a little more about when/what she needs to eat!
Hooray for real milk!
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